Archive for January, 2020

Fred Rodgers on Disabilities

Mr. Rodgers of the long running children’s show “Mr. Rodger’s Neighborhood” (1968-2001) had some meaningful words in regard to children (and adults) with disabilities. For instance, from the “Fred Rodger’s Productions website:”Fred Rodgers on Disabilities

Some Personal Stories:

A visit with Jeff Erlanger (1981).This is a segment of one of his shows in which he talks with a 10-year-old boy in a wheelchair:

Jeff Erlanger

See Also:

How Fred Rogers and Jeff Erlanger Became Friends for Life

A young lady named Siophan Neely who is on the autism spectrum shares how Mr. Rodgers has impacted her life:

https://themighty.com/2018/07/mr-rogers-has-an-important-message-for-people-with-disabilities/

Two more articles by Siophan Neely on “The Mighty:” Siobhan Neely

Some You Tube videos featuring Mr. Rogers and Siophan Neely:

All About Wheelchairs: My Wheelchair is Freedom, Home is Where your Wheelchair is, and More

The First four posts on this theme are from the blog of Mary Evelyn, a Greek Orthodox Christian mother who has a son named Simeon who has spina bifida. The first post is by a young lady, Kathleen Downes; the last picture displayed on the post is a recent picture of her with big smile. The next three posts relate Mary Evelyn and Simeon’s developing relationship with his wheelchair. Mary Evelyn is a gifted writer and very funny. The last two posts are from other sources. The first is about a very generous man who made a big difference, and the second relates the value of a wheelchair to the life of Senait Melesse, from Ethiopia.

Then, four you tube videos are featured, two starring Kathleen Downes and two featuring joyful Africans in wheelchairs (The second one features the ministry of International Orthodox Christian Charities).

Enjoy! 

http://www.whatdoyoudodear.com/my-wheelchair-is-freedom-guest-post-from-kathleen-downes/

http://www.whatdoyoudodear.com/home-is-where-your-wheelchair-is/

http://www.whatdoyoudodear.com/welcome-to-wheel-world-our-first/

http://www.whatdoyoudodear.com/getting-into-a-wheelchair/

How One Man’s Trip to Toys ‘R’ Us Brought Mobility to Hundreds of Disabled Kids

Ethiopians with Disabilities Ride over Obstacles

The Struggle for the Right to Life and Home Care for Persons with Disabilities

Imagine –  you’ve reached the age when you need help with daily living tasks, and you either don’t want to be a burden on your family or

Not Dead Yet UK

your family isn’t available to help you; would you prefer to have a person come to your home to assist you, or would you prefer to be placed in a nursing home? Most older people dread the thought of being placed in a nursing home. Unfortunately, many insurance companies will not pay for home assistance. And so there is no choice. People with disabilities are in the same predicament. 

But this may change, The Disability Integration Act, which has been introduced in the U.S. House of Representatives, would require insurance companies to pay for both nursing home care and home assistance. It has 232 co-sponsors, but the Chair of the Energy and Commerce Committee, Frank Pallone (D), is blocking the Act. The following article is a call enlist the support of your local U.S. representative, and also  to change Frank Pallone’s mind.

To access the article:

Anita Cameron: Not Dead Yet Supports the Disability Integration Act 

Two more articles by NDY:

The Quality Adjusted Life Year calculates the value of disabled life as a percentage of the value of the life of a non-disabled person. This is blatant discrimination against people with disabilities! It has been rejected by the state of Oregon and by the Affordable Care Act, but New York State has allowed it’s use in a roundabout way. This article explains the situation in more detail:

NDY Demands Prohibition On Use of QALYs To Limit Health Coverage

NDY (Not Dead Yet) is a news source for the Disability Resistance Movement (DRM). One of it’s major goals is to fight against the

Euthanasia advocacy in the halls of government.  Some hospitals have been using their view of “Quality of Life” so that they can save money by “pulling the plug” on people with disabilities. Their argument is that people with severe disabilities do not have quality of life, and are not worth the effort and subsequent costs of the continued use of life-saving treatments.  So when a disabled person’s desire to live is weighed against these costs to the hospital, the pleas of the person as well as those of their family and friends are overruled by a hospital committee! 

This NDY article by Diane Coleman call for this resistance to sustained!

We Call It the “DRM” – And It’s Needed More Than Ever

The Social Inclusion of Persons with Disability in the New Rome (Constantinople)

Here is a short synopsis of a chapter from the publication Healing in Byzantium: Faith and Science , in which we find the Orthodox Christian monastic roots of the social inclusion of persons with disability within the community both within the monastery and in the society at large:

The Monastic Health Care System and the Development of the Hospital in Late Antiquity 


A deep concern with the medical, religious, and social aspects of illness runs throughout early monastic literature. A concern with illness and health, and indeed a focus on the body, is by no means unique in late antique ascetic literature, but is a common feature of late Roman philosophical and ethical belles-lettres. But in contrast to the medical obsession that so consumed members of the Roman aristocracy, monastic leaders wrestled less with the interpretation of sickness within their own bodies than with the treatment of the sick within society. Such an overriding concern with the care for the sick, and also with the social inclusion of the sick and disabled within the community, pervades monastic rules, letters, homilies, and biographies from the fourth and fifth centuries. .  . . .

They were offered material and emotional comfort in their time of need, and were exempted from their normal responsibilities of work, diet and prayer.  . . . 

The innovative approaches to healing within early Christian monasticism would bear a significant influence on the development of the hospital in early Byzantium.  . . .

by Andrew Crislip, Ph.D., an Assistant Professor of Religion at the University of Hawaii at Manoa, in Honolulu, where he teaches courses in Biblical Studies, Early Christianity, and Theory and Method in Religious Studies. He received his Ph.D. from Yale University in 2002.

See also Health and Healing in Byzantium, 7 pp.

To access:

Click to access health-and-healing-in-byzantium-reading-corner-pages.pdf

 

 

Depression and Anxiety: Understanding them, Coping with Them, and Helping Others cope with Them

From the Greek Orthodox Archdiocese of America Website:

Talk About Depression

A Personal Experience:

https://themighty.com/2016/06/how-to-help-a-family-member-or-friend-with-anxiety-and-depression/

Another Personal Experience, by a Pastor:

Dear Church, Let’s Talk About Mental Health

Also:

https://themighty.com/2019/08/love-someone-with-anxiety-depression-what-to-say/?utm_source=newsletter_mental_health&utm_medium=email&utm_campaign=newsletter_mental_health_2019-08-23&$deep_link=true

14 Phrases Kids Said That Were Code Words for ‘I’m Anxious’

From You Tube:

 

Welcoming and Incorporating Persons with Disability into the Parish

Summer Kinard, an Orthodox Christian with autistic children, shares 7 ways that parishioners can support autistic people in Church.

To access:

7 Ways to Act on Your Autism Awareness in Church

Faithtree is an Orthodox Christian organization which seeks to help and enable priests and lay leaders for the ministries of the parish church. This article deals with our attitudes toward people with disability and questions we need to ask ourselves in order to prepare ourselves to love people with disabilities and their families, while at the same time beginning our approach by seeing the personhood rather than their disability. If we see them as a helpless charity case they will realize that they are being looked down upon. We all yearn to be treated with dignity and respect, and so do they. 

The article:

https://faithtree.org/blog/how-words-can-make-a-difference-in-your-church/

A post along the same lines, by Ellen Stumbo . . . .

Disability Etiquette When Meeting Kids With Disabilities and Their Parents

A review of a book addressing these matters from Faithtree, by Anna-Sarah Farha

To access:

Removing Barriers: A Step-By-Step Guide to Making Your Parish More Disability Friendly (a Faithtree Resource)

A Short Video:

From the Greek Orthodox Archdiocese Website: A Webinar 


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