Archive for the 'families' Category

Traumatic Brain Injury Awareness and Support

On Facebook there is a page for those who have had brain injuries to share their stories and information, most of which relate to healing:

Wikipedia: Concussion Anatomy

Facebook Group: Traumatic Brain Injury Awareness and Support

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See below for larger picture & words

A few of the websites shared on this Facebook Page: 

Surviving Traumatic Brain Injury 

(Donna O’Donnell Figurski) Many personal stories, a list of resources, a book with the story of a caregiver (Donna) and more 

No Memory of the Day that Changed My Life

 (Michelle Munt) Her story, blog posts, chat groups, and more

The Hope After a Brain Injury Network

“Our Mission  is to Advocate, Educate, and Serve all Affected by Brain Injury” A Magazine, a Blog, Resources, and more

 

 

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An Orthodox Christian teacher’s thoughts for the parents of her former students who have special needs

A Post from The Quest for Healing: 

To the Parents of My Former Students Who Have Special Needs

by Maria Crassas, an educator, special needs mom, and health advocate. In her own words: “I am blessed with a son who has Down syndrome and autism.” As she perused her son’s IEP report, she had an insight, which she shares here. (My son is more than this IEP report.) And then she thought about her students and their parents. Read what Maria shares with them, from her heart, in her post.  

 

The Message Given to the Parents of Alfie Evans & Charlie Gard, and to all British Citizens (and perhaps, in Time, to us as well) : The GOVERNMENT DECIDES When to Pull the Plug and to Stop the Food and Water, NOT YOU (And don’t even think about pursuing alternate treatments).

April 23, 2018 – Respirator Removed, Nutrition Withheld. Pope Francis’ offers an alternative in line with Catholic values; English courts reject and prohibit this option; Alfie holds on . . . The Daily Caller: Alfie Evans Is Breathing On His Own But Government Officials Are Starving Him To Death. WHY?  

April 28, 2018 – LifeNews: Alfie Evans has died.

November 1, 2012, 6 years earlier, the Guardian reports that 85% of England’s National Health Service Trusts have adopted the Liverpool care pathway (LCP) – The Guardian: NHS trusts adopt end-of-life regime which can involve withholding food

1986: Paul Brophy, disabled by a brain injury,  dies eight days after the Massachusetts Supreme Court authorizes hospital personnel to halt his G-Tube Feedings – Catholic Culture: When Food and Water are Withheld . . . 

Alfie Evans and his parents are not the first such victims of Britain’s National Health Service; in 2017 it was Charlie Gard: Alliance for Freedom: Charlie Gard and the Death of Dignity See Also – The Witherspoon Institute: Parental and Governmental Authority in Medical Decisions: The Tragic Case of Charlie Gard

From the Bloomberg Review, April 26, 2018:

It really is this simple. The British state has decided that it is the baby’s best interest to die, and it is trying to ensure that he dies expeditiously. It is overriding parental rights in the process.

A Call for legal reform The Spectator: The agony of Alfie Evans’ parents was made worse by bad law

The law never envisaged the situations we are now seeing, where the NHS wishes to terminate care and the law is used to stop the parents from seeking other solutions – usually from overseas.

An indictment, with scholarly analysis: Church Life Journal: Aiming at the Death of Disabled Children

Another case, Ashya King. His parents took him from England to Europe (Prague) for treatment. The parents spent three days in jail for this. But the proton-beam treatment was successful; Ashya is cured! Though England’s National Health Service refuses to treat Ashya King’s cancer, he is cured when his parents have him treated in another country

The British National Health Service responds by refusing therapy anywhere in the country to Ashya; the parents have to take him to Spain for that. The NHS Retaliates by refusing Ashya King Therapy

Meanwhile, in the State Capital of New York: LifeNews: Proposed New York State Bill Allows Starving Patients to Death Without their Consent But thanks be to God, https://rocklandrtl.org/2015/05/06/great-news-from-albany-denial-of-treatment-bills-withdrawn/  There are people in power that will continue to push for this!

In Texas, a Hospital Ethics Panel – Not the Patient or Family – Decides Whether to End Care

“Everything Tells Us about God:” An Autism-Accessible Book

Everything Tells Us About God is an illustrated children’s picture book by Katherine Bolger Hyde. The illustrations are by Livia Coloji.  Also: (Livia’s Facebook page)

The following blog post is a conversation about the book  between Charlotte Riggle and Summer Kinard, A brief summary description would not do the book justice, and these ladies provide a substantial commentary on Everything Tells Us About God:

Everything Tells Us about God: An Autism-Accessible Book

The Publisher’s Page: Ancient Faith: Everything Tells Us About God

A 12 Minute Audio Interview: Ancient Faith: An Interview with Katherine Bolger Hyde

Antiochian Orthodox Christian Archdiocese of North America: Gleanings From a Book: Everything Tells Us About God by Katherine Bolger Hyde

The following one minute You Tube clip concerning another of Kathryn Bolger Hyde’s books, Lucia, Saint of Light, is read by Chrissi Hart:

 

 

 

Breakthrough Study Reveals Biological Basis for Sensory Processing Disorders in Kids

from The University of California San Francisco News Center:

A Biological Basis for Sensory Processing Disorders in Kids

by Juliana Bunim

The discoveries this article relates provide answers for parents with children who have SPD, and, Lord willing, to some ways of dealing with the challenges these children face.

Two You Tube Videos for an introduction to Sensory Processing Disorder (SPD):

May 26 – St. Nicholas Program: Youth with Disabilities and Their Families; Emlenton, PA

Dr. Eric Carter: Creating a sense of belonging for Children and Adults with Disabilities

NOTE: Dr. Eric Carter is not affiliated with LDS or Brigham Young University; he first studied at Wheaton College and now is a Professor in the Department of Special Education at Vanderbilt University. He has concentrated his efforts toward the inclusion of people with disability in Churches, and while not an Orthodox Christian, has a lot of good insights that could be put into practice in Orthodox Christian Parishes. The following resource is fairly short and simple, summarizing the major themes he has found to be most helpful:

Ten simple ways to create a sense of belonging for children and adults with disabilities

 


Also, one of the many of Dr. Carter’s Presentations on You Tube. This one of the shorter ones:




_______________

Here are some other resources he has placed online which go into the details of these themes:

Putting faith and job seekers with disabilities to work

(Gal 5:6: For in Christ Jesus neither circumcision nor uncircumcision avails anything, but faith working through love.)

One of Dr. Eric Carter’s Books:

Including People with Disabilities in Faith Communities: A Guide for Service Providers, Families, and Congregations

Bio: Dr. Eric Carter Also: His Faith Ability Page

Supporting The Expression of Spirituality For Persons with Intellectual Disabilities:

http://faithanddisability.org/wp-content/uploads/2015/02/RESEARCH-REPORT-.pdf


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