Archive for the 'accessibility' Category

Disaster and Disability

 From the Not Dead Yet | The Resistance website: an article addressing advance preparedness for persons with disability in the event of a disaster. The article lists two online resources (and another which is no longer accessible) which were utilized in Houston during Hurricane Harvey, but are available for a persons with disabilities anywhere in the USA. Disaster Survivors with Disabilities Hotline Phone: (800) 626-4959 from  Disaster Strategies: About the Partnership

The second resource, which explains the steps a person with disabilities and the wider community can take in the event of a disaster:  Emergency Preparedness – A Common Sense Measure for the Disability Community

The article which is the source of these online resources: Portlight Strategies – Disaster and Disability

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Charlotte Riggle’s Blog and Books

Charlotte Riggle is an Orthodox Christian writer. There’s a lot of helpful information in her posts and writings for people with disabilities, their families, and their friends.

          St. Nicholas of Myra

Here are some examples of her posts which touch on the lives of persons with disabilities:  

There are also many reviews of newly published children’s books in her blog. Here’s Charlotte Riggle’s home page and her two children’s books:

Home Page:  Charlotte Riggle  

Books: Catherine’s Pascha & The Saint Nicholas Day Snow

Shop: Books, Gifts, and Embroidery Patterns

Now available from the National Braille Press : Three Orthodox Christian Books in Braille

 From the Website of the Greek Orthodox Archdiocese of America:

Braille Alphabet

Archbishop Demetrios Visits National Braille Press, Receives First Copies of Books for Orthodox Ever Published in Braille

The three books:

The Divine Liturgy of St. John Chrysostom

 My Orthodox Prayer book

Speaking to God

Rev. Dr. Anton Vrame, Director of the Department of Religious Education, which worked with the Braille Press to create the three books, noted that these three books were selected because they could assist the blind Orthodox Christian in his or her personal interior spiritual and devotional life.

To order:

The Orthodox Marketplace: Braille

 

 

Other great Orthodox Christian blogs that address disability issues

I’ve been surveying Orthodox Christian disability resources for 10 years, and now I will be taking a break.   Many others, mostly mothers, have taken up blogging, sharing their experiences and discoveries. As I have worked in a group home for many years, this is personal for me as well, but not in the same way as a mother of a child with disabilities. Mothers are mothers 24 hours a day, for their entire lives. There is great depth to what they write, not necessarily in terms of new information,  but the kind of depth which comes from the heart, which is the important kind of depth. This is true, of course, of the blog and websites written by persons with disabilities themselves.

You will find much, ongoing information, personal and otherwise, on the blogs listed on the webpage below. Give them a look:

Online Orthodox Christian persons with disabilites & their family members

 

 

 

 

 

 

Disability Resources: The personal blogs and offerings of Orthodox Christians with disabilities

(Also included: The online offerings of family members)

The author of this blog is a group home advisor who lives and works with adults with developmental disabilities. (Me – W.G.) I’ve done this for 26 years. It has had its many moments of frustration. And it has had its wonderful moments as well. I thank God for this opportunity, this life, these relationships.

But the truth is that I have been paid for my service as an advisor. And the organization with which I am employed gives me time off. And in a number of years, not so far away, I will retire from this role.

This is not the case with the people with disabilities themselves, and their family members. These relationships- mother, father grandmother, son, daughter – are lifelong;  for 24 hours a day, 7 days a week one lives with a disability with no time off, unless, of course, there is healing or successful medical intervention.

The webpages below are those of such people- Orthodox Christian persons with disability and their family members. For ten years I have compiled these resources and commented on them. But the insights shared on the websites below come from a place deeper within those that share them than my thoughts on the subject. I invite you to learn from them.

Online Orthodox Christian persons with disabilities & their family members


Orthodoxadultautists: A blog by an orthodox autist, for orthodox autists   by Monica. See especially A letter to the Church

Stephen Yates and son Axel: Yates and Son

Morning Coffee by Alana; see especially Sitting on the Front Pew 

Beth Hopkin’s In Case of Fire, Use Stairs

Bethany Sheldahl’s weblogNot of this World

 Catherine’s Pascha: Wheelchairs and Sidewalks by Charlotte Riggle (See also Home Page & Trailer for the book “Catherine’s Pascha” )

The Oprisko familyThe Least of These: Raising autism in the church, with dignity

Pasha, Russian orphan, has been adopted by David and Dawn Heatwole, members of Saint Catherine Mission, Hagerstown, MD

What Do You Do DEAR? Telling the honest truth about our beautiful new normal by Mary Evelyn

And Baby Makes 12 A conversation between Khorea Frederica Mathewes-Green and Mary Klopcic; from Ancient Faith Radio also Mair’s Momilies see especially How do you do it?

Girada Marius’ “I want to fight! I write using the nose, but I write … “

Loving a Child with Autism by Khorea Frederica Mathewes-Green; from Frederica.com

The Story: Steve and Tony Sakak  + (Website Homepage)

The Tcaci family Mental Health Advocates in Moldova Use Film to Tell Stories of Children with Disabilities

Facebook: Deaf Orthodox Christians

Facebook: Kathyrn Kessler, an Orthodox Christian with Crohn’s Disease: Fighting the Good Fight With Faith And Love 

Facebook: Koinonia for Exceptional Orthodox Families 

The Turner Family, Randolph, New Jersey 

Greek American Girl 

Living with the Woof (a service dog)

Disability Resources: Ministries

The ministries that have been found (surely there are many more) are listed on two pages, international and U.S. (my location).  The ministries in traditional Orthodox Christian countries are considerably more developed, and these ministries serve as a goal for the developing Orthodox Church in the U.S. to aim for.

Ministries (International) 

This list contains Orthodox Christian ministries which serve and enable persons with disabilities in Russia, Lebanon, Belarus, Macedonia, Egypt, Palestine, the Ukraine, Australia, Georgia, India, Canada, Moldova, Ethiopia, Romania, Sierra Leone, Papua New Guinea, Kenya, Albania, Armenia, Bulgaria, the Czech Republic, Finland, Hungary, Serbia-Montenegro, Syria, Poland, the United Kingdom, and Greece. Quite a few are associated with monasteries. Here are seven outstanding efforts:

Al-Kafaàt (Abilities) (Lebanon); Monastery of St. Martyr Grand Princess Elizabeth (Belarus); The Village of Panfilovo (Russia); The Four Homes of Mercy (Palestine); Tikhvin Icon of Our Lady Temple, (Moscow, Russia); Saint Paraskeva Orthodox Charity (Romania):  Theotokos Foundation, (Greece).

Ministries (U.S.) 

As the Orthodox Church is spread out across the U.S., most of the ministries listed are individual Parish ministries, and one Parish Church can do just so much; most of the ministries are once a month or once a year one day or weekend events which are held once a month or once a year.  The Special Olympics Multi-Sport Training Camp at Antiochian Village, Ligonier, Pennsylvania   sponsored by the Antiochian Orthodox Christian Archdiocese of North America, is an annual (once a year) week-long event.

But there are some ministries that operate on a continual basis; The Hellenos House (see also Christopher), on Long Island, New York, which is affiliated with The Challenge Liturgy Ministry (see also Ministry Profile), providing a permanent home for seven persons with developmental disabilities.

There is also the Sheltering Tree in Omaha, Nebraska, which also provides housing, day programs, and frequent, periodic activities, both at their Activity Center and out in the community. Their motto is “Serving and empowering people with developmental disabilities.”

 

 

Disability Resources: Articles and Books

There are lots of articles but not so many books. Many of the books listed address people with disabilities as a side topic, and I’ve included some non-Orthodox Christian books that contain Orthodox Christian elements. But the ones that spring from family johnlahutskyrelationships and friendships are inspiring and instructive.

In To Read – Books: 

The Boy from Baby House 10 & Catherine’s Pascha In God’s Hands: A mother’s journey through her infant’s critical illness & Getting My First Hug

The articles are on two different pages, one for individual articles and the other for webpages that contain numerous articles concerning persons with disability:

To read (online articles) & To read (online article collections)

From the article collections, I would recommend beginning with The Orthodox Church of America’s Parish Ministry Resources, especially Parish Development

The individual online articles cover a wide variety of situations and perspectives in regard to disability and the Orthodox Church, as well as the situations and issues Orthodox Christians with disabilities face in this world: their opportunities, dilemmas, and struggles. Look over the list and read a couple of articles which catch your eye. And then feel free to read some more!

 


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