Archive for the 'stories' Category

Special Needs Moms

I just finished the short book The Child Who Never Grew” (with reviews and ratings on the Goodreads website) by Pearl Buck, who won both

Pearl Buck receiving the Nobel Prize from the King of Sweden

the Pulitzer Prize and the Nobel Prize for Literature for her writings. She was the mother of a mentally challenged daughter, and the book is a memoir of her experience of this aspect of her life.  She writes of events in the early 20th Century, a different and darker era for the Special Needs community, but with feelings that are universal for those in a similar situations. Pearl Buck was a gifted and driven person, and the experience was very difficult for her.

Following the same theme, Katherine Paulson has written a post  in her weblog Without a Crystal Ball: Raising a Child with Special Needs

Here’s the post: Why Special Needs Moms Don’t Fit In

I’m sure some of you will be able to relate to both of these writings.

 

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Disaster and Disability

 From the Not Dead Yet | The Resistance website: an article addressing advance preparedness for persons with disability in the event of a disaster. The article lists two online resources (and another which is no longer accessible) which were utilized in Houston during Hurricane Harvey, but are available for a persons with disabilities anywhere in the USA. Disaster Survivors with Disabilities Hotline Phone: (800) 626-4959 from  Disaster Strategies: About the Partnership

The second resource, which explains the steps a person with disabilities and the wider community can take in the event of a disaster:  Emergency Preparedness – A Common Sense Measure for the Disability Community

The article which is the source of these online resources: Portlight Strategies – Disaster and Disability

Charlotte Riggle’s Blog and Books

Charlotte Riggle is an Orthodox Christian writer. There’s a lot of helpful information in her posts and writings for people with disabilities, their families, and their friends.

          St. Nicholas of Myra

Here are some examples of her posts which touch on the lives of persons with disabilities:  

There are also many reviews of newly published children’s books in her blog. Here’s Charlotte Riggle’s home page and her two children’s books:

Home Page:  Charlotte Riggle  

Books: Catherine’s Pascha & The Saint Nicholas Day Snow

Shop: Books, Gifts, and Embroidery Patterns

SBSK: “Normalizing the Diversity of the Human Condition.”

 *SBSK* More and more, I’m discovering that stories hit home, while mere information is often just deposited in the head. This website is not a Church site, but the stories that are told show forth how all people are made in the image of God. As descriptive words go, the word “special” has used up it’s shelf life in regard to people with disabilities; what is desired is not to be seen as special, but as a person like everyone else. While the title of this organization does begin the focus on the special, the home page reveals that the actual goal is to see everyone as normal (normalization)! For Orthodox Christians, to acknowledge that despite the great variety of peoples in the world, all are made in the image of God.

And while Orthodox Christians cannot affirm that all lifestyles are normal as the folks at SBSK are willing to do, we are committed to refraining from passing judgement on any person, as that is for the all-wise Lord to do at the proper time which He will choose. We are all in process. 

And these short video stories illustrate the value of people of disabilities who are also in process.

To access:

Special Books by Special Kids

The Worthwhile Lives of Persons with a Disability (disabilities)

The website:

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Live On!

This is a disability website celebrating life. Even with all the challenges people with disabilities face. A happy, fulfilling, . . . . incredible life. 

No matter what some narrow-minded people in our society think.

The creators of this web page, who are disabled themselves, are up front about the more difficult challenges: the bullying of young people, the institutionalization of adults. Their goal is to reach those who are discouraged, despondent, even despairing, and those with suicidal thoughts through a series of short, powerful videos in which persons with a disabilities overcome their obstacles and establish a meaningful life. Valuable resources are also provided toward this goal.

A photographer of note:

River Bend Galleries

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Pertinent posts from the Not Dead Yet website: 
Disabililty Rights Organizations Issue Statement Opposing Assisted Suicide Laws and Supporting Health Care
Statement of Solidarity in Observance of Suicide Prevention Month
Disability Rights Toolkit for Advocacy Against the Legalization of Assisted Suicide

“We Are All Children of God:” October 14, 2017 at Kansasville, Wisconsin

Mark your calendars. To enroll(ENTRY FORM)

Other great Orthodox Christian blogs that address disability issues

I’ve been surveying Orthodox Christian disability resources for 10 years, and now I will be taking a break.   Many others, mostly mothers, have taken up blogging, sharing their experiences and discoveries. As I have worked in a group home for many years, this is personal for me as well, but not in the same way as a mother of a child with disabilities. Mothers are mothers 24 hours a day, for their entire lives. There is great depth to what they write, not necessarily in terms of new information,  but the kind of depth which comes from the heart, which is the important kind of depth. This is true, of course, of the blog and websites written by persons with disabilities themselves.

You will find much, ongoing information, personal and otherwise, on the blogs listed on the webpage below. Give them a look:

Online Orthodox Christian persons with disabilites & their family members

 

 

 

 

 

 


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