Archive for the 'stories' Category

A book for traumatic brain injury survivors: “My New Normal”

I discovered this book on Facebook, which was posted on the timeline of the group Traumatic Brain Injury Awareness & Support

From Amazon (click on picture for more):

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Summer Kinard: Patron Saints of Autism

An Article from Summer Kinard’s website “writing, autism, & theology as a mother of joy:”

The Patron Saints of Autism

Access the Article by Clicking on the Title below):

Patron Saints of Autism

Wikimedia: the Most Holy Theotokos

Wikimedia: St. Antony

Wikimedia: St. John Maximovich

Wikimedia: St. Bartholomew

Wikimedia: St. Panteleimon

Wikimedia: St. Anastasia

Aphasia

Many people probably have Aphasia and don’t even know it!

What is Aphasia?

Aphasia is a language disorder that happens when you have brain damage. Aphasia may make it hard for you to understand, speak, read, or write. It does not make you less smart or cause problems with the way you think.

Signs of Aphasia

Aphasia can lead to a number of different problems. You may have trouble talking, understanding, reading, and writing.

Talking
You may find that you:

Can’t think of the words you want to say.
Say the wrong word. Sometimes, you may say something related, like “fish” instead of “chicken.” Or you might say a word that does not make much sense, like “radio” for “ball.”
Switch sounds in words. For example, you might say “wish dasher” for “dishwasher.”
Use made-up words.
Have a hard time saying sentences. Single words may be easier.
Put made-up words and real words together into sentences that do not make sense.
Understanding
You may:

Not understand what others say. This may happen more when they speak fast, such as on the news. You might have more trouble with longer sentences, too.
Find it hard to understand what others say when it is noisy or you are in a group.
Have trouble understanding jokes.
Reading and Writing
You may have trouble with the following things:

Reading forms, books, and computer screens.
Spelling and putting words together to write sentences.
Using numbers or doing math. For example, it may be hard to tell time, count money, or add and subtract.

Causes of Aphasia

Aphasia is most often caused by stroke. However, any type of brain damage can cause aphasia. This includes brain tumors, traumatic brain injury, and brain disorders that get worse over time.

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On Charlotte Riggle’s Blog: The Logos for My Nonverbal Son, by Summer Kinard

An Orthodox Christian Mom explains the success of an assisted language learning system (PODD) through her own experience with her non verbal son.The mom, whose name is Summer Kinard, also discusses a fuller meaning of the Greek word “Logos” in terms of her son’s developing relationship with her and her husband:

Logos has grown up in a Church filled with words and people and holy images. It cannot be separated from the holy Church or the witness of the icons to the Incarnation. We were never able to know the Logos until He became flesh and dwelt among us.

That’s where I see the Logos growing in my boy. The Logos of God is relationship, not vocabulary. In stilted, simple language, we are limping toward meaning, all the while becoming more and more like God.

And this applies to all who are pressing forward to know the Lord.

The Post: The Logos for My Nonverbal Son

The System: PODD: Pragmatic Organisation Dynamic Display

On You Tube: We Speak PODD

 

John Swinton: Who is the Stranger? A Practical Theology of Hospitality and Friendship

 

John Swinton is a theology professor at the University of Aberdeen in Scotland. To learn more:

Wikipedia: John Swinton

Traumatic Brain Injury Awareness and Support

On Facebook there is a page for those who have had brain injuries to share their stories and information, most of which relate to healing:

Wikipedia: Concussion Anatomy

Facebook Group: Traumatic Brain Injury Awareness and Support

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See below for larger picture & words

A few of the websites shared on this Facebook Page: 

Surviving Traumatic Brain Injury 

(Donna O’Donnell Figurski) Many personal stories, a list of resources, a book with the story of a caregiver (Donna) and more 

No Memory of the Day that Changed My Life

 (Michelle Munt) Her story, blog posts, chat groups, and more

The Hope After a Brain Injury Network

“Our Mission  is to Advocate, Educate, and Serve all Affected by Brain Injury” A Magazine, a Blog, Resources, and more

 

 

The Message Given to the Parents of Alfie Evans & Charlie Gard, and to all British Citizens (and perhaps, in Time, to us as well) : The GOVERNMENT DECIDES When to Pull the Plug and to Stop the Food and Water, NOT YOU (And don’t even think about pursuing alternate treatments).

April 23, 2018 – Respirator Removed, Nutrition Withheld. Pope Francis’ offers an alternative in line with Catholic values; English courts reject and prohibit this option; Alfie holds on . . . The Daily Caller: Alfie Evans Is Breathing On His Own But Government Officials Are Starving Him To Death. WHY?  

April 28, 2018 – LifeNews: Alfie Evans has died.

November 1, 2012, 6 years earlier, the Guardian reports that 85% of England’s National Health Service Trusts have adopted the Liverpool care pathway (LCP) – The Guardian: NHS trusts adopt end-of-life regime which can involve withholding food

1986: Paul Brophy, disabled by a brain injury,  dies eight days after the Massachusetts Supreme Court authorizes hospital personnel to halt his G-Tube Feedings – Catholic Culture: When Food and Water are Withheld . . . 

Alfie Evans and his parents are not the first such victims of Britain’s National Health Service; in 2017 it was Charlie Gard: Alliance for Freedom: Charlie Gard and the Death of Dignity See Also – The Witherspoon Institute: Parental and Governmental Authority in Medical Decisions: The Tragic Case of Charlie Gard

From the Bloomberg Review, April 26, 2018:

It really is this simple. The British state has decided that it is the baby’s best interest to die, and it is trying to ensure that he dies expeditiously. It is overriding parental rights in the process.

A Call for legal reform The Spectator: The agony of Alfie Evans’ parents was made worse by bad law

The law never envisaged the situations we are now seeing, where the NHS wishes to terminate care and the law is used to stop the parents from seeking other solutions – usually from overseas.

An indictment, with scholarly analysis: Church Life Journal: Aiming at the Death of Disabled Children

Another case, Ashya King. His parents took him from England to Europe (Prague) for treatment. The parents spent three days in jail for this. But the proton-beam treatment was successful; Ashya is cured! Though England’s National Health Service refuses to treat Ashya King’s cancer, he is cured when his parents have him treated in another country

The British National Health Service responds by refusing therapy anywhere in the country to Ashya; the parents have to take him to Spain for that. The NHS Retaliates by refusing Ashya King Therapy

Meanwhile, in the State Capital of New York: LifeNews: Proposed New York State Bill Allows Starving Patients to Death Without their Consent But thanks be to God, https://rocklandrtl.org/2015/05/06/great-news-from-albany-denial-of-treatment-bills-withdrawn/  There are people in power that will continue to push for this!

In Texas, a Hospital Ethics Panel – Not the Patient or Family – Decides Whether to End Care


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