The website LifeNews.com last July shared the result of a study published that month in the journal Pediatrics: Official Journal of the American Academy of Pediatrics in regard to the experiences of 503 parents of children with Trisomy 13 & 18, more severe forms of Down Syndrome.
According to the abstract of the study, while 87% of the parents were told by their pediatricians that their unborn children with this condition were incompatible with life, 30% opted for a full treatment plan of intervention; 79% of the children were still living. 97% of the parents reported their children as happy, and that their lives were enriched by them, irrespective of the prognosis that their lives would be short.
The author of this LifeNews.com article entitled Families of Kids With Disabilities; Our Lives Are Enriched, Alex Schadenberg, the Executive Director and International Chair of the Euthanasia Prevention Coalition, also wrote an article on the personal of experience of the family of Lilliana Dennis, entitled Trisomy 18 is not a death sentence: The story of Lilliana Dennis. Within the article one can view a 3 1/2 minute YouTube video entitled Lilliana Joy Dennis – First Birthday.wmv.
This article draws on another one written by Ryan Trares and published in the Daily Journal in Franklin Indiana, Hearts full of hope: Surgery helps extend life of infant with rare condition.
The Abstract: The Experience of Families With Children With Trisomy 13 and 18 in Social Networks. Authors of the article: Annie Janvier, MD, PhDa, Barbara Farlow, BEng, MBAb, and Benjamin S. Wilfond, MDc.
Barb Farlow, along with her husband Tim, is the parent of Annie, a child with Trisomy 13, who died just short of three months old in 2005. Read Helen Henderson’s article, How Annie’s short life inspired her mother’s mission, published in thestar.com, a publication based in Toronto, Canada.
Picture from Catholic News Live