Trisomy 18 Foundation

The McClanahan’s

Trisomy 18 Foundation: Support * Advocacy * Research

(www.trisomy18.org)

What is Trisomy 18?

“… Edward’s Syndrome … a chromosomal defect … [In distinction from] Down syndrome [trisomy 21], which also is caused by a chromosomal defect, the developmental issues caused by Trisomy 18 are associated with medical complications that are more potentially life-threatening in the early months and years of life. …. 

…. although less than 10 percent survive to their first birthdays, some children with Trisomy 18 can enjoy many years of life with their families, reaching milestones and being involved with their community.

Letter from Victoria Miller, [mother of Isaac] founder and executive director: Welcome to the Trisomy 18 Foundation 

Here at the Foundation, we are embarking upon an era of new hope, an era in which Trisomy 18 can become a pre- ventable and treatable condition for future generations.

….  Isaac remained with us a short but loving 11 days before we had to return him to God. …

Every child’s life, no matter how fragile their life or brief their days, forever changes our world.

A Very Special Birthday (21) for a Young Man with Trisomy 18

To his mother, Trisomy 18 child in St. Petersburg is forever her perfect boy

(Video) Teeen With Trisomy 18 Continues To Make Strides

Trisomy 18 is not a death sentence. The story of Lilliana Dennis – updated.

“Hope in trisomy 18″ The McClanahan journey

Hope for Trisomy 13 and 18

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